Adult Family Survey (AFS) 2020-21 State Report

Missouri (MO) Report

Contents

What is NCI-IDD?

The National Core Indicators® – Intellectual and Developmental Disabilities (NCI®-IDD) is a voluntary effort by state developmental disability agencies to track their performance using a standardized set of consumer and family/guardian surveys with nationally validated measures. The effort is coordinated by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI).

In 2020-21, a total of 48 states, the District of Columbia and 22 sub-state entities participated in NCI-IDD.

Where are the statistics in this report from?

This report includes findings from the National Core Indicators 2020-21 Adult Family Survey (AFS). The NCI-IDD averages data shown are weighted. These data are comprised of 4,952 valid surveys collected across 12 states: Arizona (AZ), Delaware (DE), Florida (FL), Georgia (GA), Louisiana (LA), Maryland (MD), Minnesota (MN), Missouri (MO), New Jersey (NJ), Oklahoma (OK), Pennsylvania (PA), Virginia (VA).

What is the NCI-IDD Adult Family Survey?

The NCI-IDD Adult Family Survey is used to gather data on family outcomes. It is mailed to families who have an adult family member who lives with the respondent and receives at least one service in addition to case management from the state service system. The survey collects demographic information on both the individual receiving services (‘family member’) as well as the person who fills out the survey (the ‘respondent’) and information on services and supports received. The survey is continually refined and tested to ensure it is valid and reliable.

Please note that while the term “case manager” is used throughout this report, the same role may also be referred to as “service coordinator” or “supports coordinator” depending on the state.

Important note on reponses: All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses, and personal characteristics.

Important note on Impact of COVID-19

The 2020-21 NCI-IDD Family Survey data collection cycle began July 1, 2020 and ended June 30, 2021. Because the family surveys do not collect information on the date of survey completion, we cannot fully assess what impact the pandemic had on data collected at different times throughout the year. Additionally, we cannot determine whether COVID-19 impacted state samples. For instance, we do not know if certain populations were more or less likely to respond to the survey and we do not know whether or how responses were affected for specific questions. While these data will serve as an important baseline, and meaningful resource for states to understand the overall impact of services on families of individuals being served, these data should be read with caution and not for direct comparison with pre-pandemic years.

COVID-19 Supplement

To help better understand the overall impact of COVID-19 on families, NCI-IDD added a state-optional COVID-19 Supplement to all NCI surveys. The COVID-19 Supplement is intended to support the understanding of the experiences of people with disabilities and their families during the COVID-19 pandemic, and their interactions with services. The NCI-IDD Family Surveys COVID-19 Supplement can be found at this link.

What is included in this report?

This report includes this state’s Adult Family Survey data compared to the weighted NCI-IDD Average. State outcomes that are significantly higher or lower than the NCI-IDD Average are indicated with an arrow:

  1. Outcomes where the state is significantly above the weighted NCI-IDD average are denoted with an up arrow ▲;
  2. Outcomes where the state is significantly below the weighted NCI-IDD average are denoted with a down arrow ▼.

Significance is based on “Always” or “Yes” response.

The charts in this document, grouped by subdomain, display the state results alongside the average across states (NCI-IDD average). The charts are followed by accessible tables containing the same information.

To find out more about the development of the Adult Family Survey, data analysis and state samples, check out the National Adult Family Survey Report

Demographics - Family Member

Table 1. More Than One Person Living in the Home Has IDD

State Yes No N
MO 11% 89% 269
Weighted NCI-IDD Average 14% 86% 4757


Table 2. Family Member's Age

State Average Age N
MO 33.7 277
Weighted NCI-IDD Average 35.6 4752


Table 3. Family Member's Gender

State Male Female N
MO 55% 45% 273
Weighted NCI-IDD Average 58% 42% 4732


Table 4. Family Member's Race and Ethnicity

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other
MO 1% 2% 7% 0% 91% 2% 1%
Weighted NCI-IDD Average 2% 4% 16% 0% 72% 10% 2%


Table 5a. Family Member's Disabilities

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Intellectual Disability Mental Illness or Psychiatric Diagnosis Autism Spectrum Disorder Cerebral Palsy Limited or No Vision Severe or Profound Hearing Loss
MO 65% 24% 41% 20% 12% 6%
Weighted NCI-IDD Average 70% 24% 36% 21% 10% 6%


Table 5b. Family Member's Disabilities (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Brain Injury Seizure Disorder or Neurological Problem Chemical Dependency Down Syndrome Prader-Willi Syndrome Fetal Alcohol Spectrum Disorder Other Disabilities
MO 14% 31% 0% 17% 0% 1% 15%
Weighted NCI-IDD Average 10% 30% 1% 15% 0% 1% 20%


Table 6a. Family Member's Health Conditions

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Cardiovascular Disease Diabetes Cancer High Blood Pressure High Cholesterol
MO 13% 20% 5% 32% 22%
Weighted NCI-IDD Average 11% 17% 6% 29% 31%


Table 6b. Family Member's Health Conditions (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Dysphagia Pressure Ulcers Alzheimer's Disease or Other Dementia Oral Health Problems Sleep Apnea Other
MO 13% 2% 5% 18% 18% 28%
Weighted NCI-IDD Average 12% 3% 2% 13% 18% 30%


Table 7. Family Member's Preferred Means of Communication

State Spoken Gestures or Body Language Sign Language or Finger Spelling Communication Aid or Device Other N
MO 75% 19% 1% 1% 4% 265
Weighted NCI-IDD Average 75% 16% 1% 2% 6% 4818


Table 8. Family Member Has Legal Court Appointed Guardian or Conservator

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Guardianship Limited Full Has Guardianship but Level Is Unknown N
MO 21% 9% 67% 3% 264
Weighted NCI-IDD Average 28% 11% 57% 4% 4610


Table 9. Guardian or Conservator Relationship to Family Member

State Family Friend Employee of the State or Guardianship Agency Other N
MO 96% 0% 1% 3% 201
Weighted NCI-IDD Average 95% 1% 0% 4% 3014


Table 10. Family Member's Highest Level of Education

State Did Not Complete High School (and Not Currently Enrolled) Currently Enrolled in High School High School Certification High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
MO 12% 1% 30% 47% 3% 4% 3% 256
Weighted NCI-IDD Average 14% 2% 33% 37% 3% 5% 5% 4704


Table 11. Family Member's Activities in the Past Two Weeks Included Paid Individual Job in the Community

An individual job is defined as work at an individual job in a local business alongside peers who do not have disabilities. Job is part of the typical labor market (for example, competitive employment).
State Yes No N
MO 13% 87% 270
Weighted NCI-IDD Average 12% 88% 4780


Table 12. Family Member's Activities in the Past Two Weeks Included Paid Small Group Job in a Community-based Setting

A small group job is defined as work in an integrated setting, as part of a group of not more than 8 people with disabilities (for example, enclave, work crew).
State Yes No N
MO 7% 93% 267
Weighted NCI-IDD Average 5% 95% 4702


Table 13. Family Member's Activities in the Past Two Weeks Included Paid Work in a Community Job That Primarily Hires People with Disabilities

Paid work in a community job that primarily hires people with disabilities is defined as work in a setting where the person interacts with the non-disabled population; this is not in a traditional sheltered workshop and NOT enclave.
State Yes No N
MO 7% 93% 266
Weighted NCI-IDD Average 5% 95% 4694


Table 14. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in the Community

Unpaid work in the community includes: volunteering, skills training, and staff-supported community connections.
State Yes No N
MO 19% 81% 264
Weighted NCI-IDD Average 15% 85% 4707


Table 15. Family Member's Activities in the Past Two Weeks Included Paid Activity in a Facility-based Setting

Paid work performed in a facility-based setting is defined as work at a location developed specifically to provide work activity exclusively for people with disabilities; may be paid sub-minimum wage. Examples include traditional sheltered workshops or work activity centers.
State Yes No N
MO 18% 82% 268
Weighted NCI-IDD Average 9% 91% 4706


Table 16. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in a Facility-based Setting

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
MO 27% 73% 264
Weighted NCI-IDD Average 17% 83% 4667


Table 17. Family Member's Activities in the Past Two Weeks Included School

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
MO 5% 95% 265
Weighted NCI-IDD Average 9% 91% 4640


Table 18. Family Member's Activities in the Past Two Weeks Included Stay at Home

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
MO 57% 43% 253
Weighted NCI-IDD Average 72% 28% 4551


Table 19. Family Member's Activities in the Past Two Weeks Included Other Activities

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
MO 41% 59% 87
Weighted NCI-IDD Average 40% 60% 1649


Table 20. Family Member's Support Needs for Self-Injurious, Disruptive, and/or Destructive Behaviors

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
MO 51% 32% 17% 265
Weighted NCI-IDD Average 56% 30% 15% 4791


Table 21. Family Member's Level of Help Needed with Personal Care Activities (for example, bathing, dressing, eating)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
MO 26% 33% 41% 273
Weighted NCI-IDD Average 23% 36% 41% 4861


Table 22. Family Member's Need for Help with Other Daily Activities (for example, scheduling, managing money, or shopping)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
MO 5% 16% 79% 271
Weighted NCI-IDD Average 5% 19% 76% 4840


Demographics - Respondents

Table 23. Language Usually Spoken at Home

State English Spanish Other N
MO 1% 0% 0% 274
Weighted NCI-IDD Average 94% 3% 2% 4838


Table 24. Respondent's Age

State Under 35 35-54 55-74 75 or Older N
MO 4% 22% 66% 9% 274
Weighted NCI-IDD Average 3% 19% 67% 12% 4876


Table 25. Respondent's Health

State Excellent Very Good Fairly Good Poor N
MO 14% 46% 36% 5% 276
Weighted NCI-IDD Average 13% 48% 36% 3% 4871




Table 27. Respondent or Other Family Member Provides Paid Support to Family Member Receiving Services

Categories are not mutually exclusive
State Respondent Provides Paid Support Other Family Member Provides Paid Support No N
MO 10% 11% 79% 274
Weighted NCI-IDD Average 22% 17% 64% 4834


Table 28. Number of Adults in Household (Not Including Family Member Receiving Services)

State One Two Three Four or More N
MO 6% 23% 54% 17% 271
Weighted NCI-IDD Average 7% 29% 46% 19% 4833


Table 29. Number of Children (Under 18 Years Old) in Household

State None One Two Three Four or More N
MO 89% 7% 2% 2% 0% 276
Weighted NCI-IDD Average 89% 7% 2% 1% 1% 4876


Table 30. Respondent's Highest Level of Education

State No High School Diploma or GED High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
MO 5% 23% 5% 21% 45% 266
Weighted NCI-IDD Average 6% 26% 7% 20% 42% 4844


Table 31. Total Taxable Household Income of Wage Earners in the Past Year

State No Earned Income Up to $15,000 $15,001 to $25,000 $25,001 to $50,000 $50,001 to $75,000 Over $75,000 Prefer Not to Say N
MO 7% 6% 6% 19% 15% 25% 22% 267
Weighted NCI-IDD Average 11% 6% 9% 17% 14% 21% 21% 4709


Table 32. Residential Designation

State Urban or Suburban (In or Near a City or Large Town) Rural (Outside of a City or Town) N
MO 63% 37% 269
Weighted NCI-IDD Average 69% 31% 4747


Demographics - Services and Supports Received

Table 33. Services and Supports Received from ID/DD Agency

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Financial Support In-Home Support Out-of-Home Respite Care Day or Employment Supports Transportation Other Services or Supports Self-Direction or Fiscal Intermediary Services
MO 18% 30% 25% 50% 55% 23% 39%
Weighted NCI-IDD Average 17% 42% 22% 42% 50% 25% 42%


Table 34. Additional Services and Supports Received (not from the IDD Agency)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Social Security Payments (SSI/SSB) Services or Supports from Other Agencies or Organizations
MO 95% 28%
Weighted NCI-IDD Average 94% 27%


Information and Planning

































Information and Planning Tables

Table Q1. Do you get enough information to take part in planning services for your family member?

State Always Usually Sometimes Seldom or Never N
MO 33% 46% 15% 6% 265
Weighted NCI-IDD Average 39% 37% 17% 6% 4576


Table Q2. Is the information you get about services and supports easy to understand?

State Always Usually Sometimes Seldom or Never N
MO 22% 56% 18% 3% 264
Weighted NCI-IDD Average 28% 47% 20% 4% 4633


Table Q3. Does the case manager/service coordinator respect your family's choices and opinions?

State Always Usually Sometimes Seldom or Never N
MO 72% 22% 4% 2% 264
Weighted NCI-IDD Average 74% 20% 4% 1% 4638


Table Q4. Do you have enough information about other public services for which your family is eligible (for example, food stamps, SSI, housing subsidies, etc)?

State Always Usually Sometimes Seldom or Never N
MO 27% 44% 14% 15% 236
Weighted NCI-IDD Average 32% 37% 17% 15% 4188


Table Q5. Do you need help planning for your family member's future with respect to any of the following?

Categories are not mutually exclusive, therefore N is not shown
State Employment Financial Housing Legal Medical Social or Relationships Transition From School Recreation or Having Fun Other
MO 22% 32% 55% 36% 26% 32% 6% 37% 10%
Weighted NCI-IDD Average 30% 34% 49% 35% 29% 33% 8% 38% 16%


Table Q6. If you asked for crisis or emergency services during the past year, were services provided when needed?

State Yes No N
MO 45% 55% 51
Weighted NCI-IDD Average 51% 49% 881


Table Q7. Does your family member have a service plan?

State Yes No N
MO 88% 12% 251
Weighted NCI-IDD Average 86% 14% 4101


Table Q8. Does the plan include all the services and supports your family member needs?

State Yes No N
MO 83% 17% 201
Weighted NCI-IDD Average 89% 11% 3056


Table Q9. Does your family member get all the services listed in the plan?

State Yes No N
MO 78% 22% 200
Weighted NCI-IDD Average 85% 15% 3004


Table Q10. Did you or someone else in your family (besides your family member with a disability) help make the plan?

State Yes No N
MO 88% 12% 215
Weighted NCI-IDD Average 85% 15% 3285


Table Q11. Did your family member help make the service plan?

State Yes No N
MO 59% 41% 211
Weighted NCI-IDD Average 63% 37% 3253


Table Q12. Did you discuss how to handle emergencies (such as a medical emergency or natural disaster) at your family member's last service planning meeting?

State Yes No N
MO 64% 36% 203
Weighted NCI-IDD Average 69% 31% 3047


Table Q13. If your family member left school services during the past year, did they have a transition plan?

MO's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
MO n/a n/a n/a
Weighted NCI-IDD Average 42% 58% 420


Table Q14. If family member had a transition plan, did the plan include getting or continuing work in a community job?

MO's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
MO n/a n/a n/a
Weighted NCI-IDD Average 47% 53% 177


Table Q15. Does your family member have enough supports (for example, support workers, community resources) to work or volunteer in the community?

State Yes No N
MO 60% 40% 179
Weighted NCI-IDD Average 57% 43% 2977


Table Q16. Do you feel prepared to handle the needs of your family member in an emergency such as a medical emergency or natural disaster?

State Yes No N
MO 87% 13% 241
Weighted NCI-IDD Average 89% 11% 4384


Access and Delivery of Services and Supports









































Access and Delivery of Services and Supports Tables

Table Q17. Are you or your family member able to contact their support workers when you want?

State Always Usually Sometimes Seldom or Never N
MO 58% 34% 6% 2% 228
Weighted NCI-IDD Average 62% 31% 5% 2% 4343


Table Q18. Are you or your family member able to contact their case manager/service coordinator when you want?

State Always Usually Sometimes Seldom or Never N
MO 61% 33% 4% 2% 257
Weighted NCI-IDD Average 66% 28% 5% 1% 4615


Table Q19. Do support workers come and go when they are supposed to?

State Always Usually Sometimes Seldom or Never N
MO 58% 35% 5% 1% 182
Weighted NCI-IDD Average 63% 30% 6% 2% 3674


Table Q20. Do services and supports change when your family's needs change?

State Always Usually Sometimes Seldom or Never N
MO ▼ 29% 44% 18% 9% 182
Weighted NCI-IDD Average 41% 39% 14% 6% 3343


Table Q21. Do support workers speak to you in a way you understand?

State Always Usually Sometimes Seldom or Never N
MO ▼ 68% 28% 3% 0% 212
Weighted NCI-IDD Average 78% 19% 3% 0% 4104


Table Q22. Are services delivered in a way that is respectful of your family's culture?

State Always Usually Sometimes Seldom or Never N
MO 77% 20% 1% 1% 240
Weighted NCI-IDD Average 80% 17% 2% 1% 4407


Table Q23. If your family member does not communicate verbally (for example, uses gestures, sign language, or a communication aid), are there support workers who can communicate with them?

State Always Usually Sometimes Seldom or Never N
MO 25% 40% 21% 14% 57
Weighted NCI-IDD Average 32% 38% 16% 14% 975


Table Q24. Do support workers have the right information and skills to meet your family's needs?

State Always Usually Sometimes Seldom or Never N
MO 50% 38% 10% 2% 208
Weighted NCI-IDD Average 54% 35% 8% 2% 3930


Table Q25. Does your family member have the special equipment or accommodations they need?

State Always Usually Sometimes Seldom or Never N
MO 48% 38% 6% 9% 138
Weighted NCI-IDD Average 50% 33% 11% 7% 2151


Table Q26. Can your family member see health professionals when needed?

State Always Usually Sometimes Seldom or Never N
MO 71% 25% 4% 0% 269
Weighted NCI-IDD Average 74% 22% 4% 1% 4776


Table Q27. Does your family member's primary care doctor understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
MO ▼ 52% 39% 8% 1% 258
Weighted NCI-IDD Average 66% 26% 6% 1% 4696


Table Q28. Can your family member go to the dentist when needed?

State Always Usually Sometimes Seldom or Never N
MO 60% 22% 7% 10% 268
Weighted NCI-IDD Average 65% 21% 7% 8% 4728


Table Q29. Does your family member's dentist understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
MO ▼ 55% 36% 6% 3% 236
Weighted NCI-IDD Average 66% 24% 7% 3% 4256


Table Q30. If your family member takes medications, do you know what they're for?

State Always Usually Sometimes Seldom or Never N
MO 88% 9% 2% 1% 249
Weighted NCI-IDD Average 92% 5% 1% 1% 4216


Table Q31. Do you, your family member, or someone else in your family know what is needed to safely take the medications (when it should be taken, how much to take, and the potential side effects)?

State Always Usually Sometimes Seldom or Never N
MO 89% 9% 1% 1% 246
Weighted NCI-IDD Average 91% 7% 1% 0% 4199


Table Q32. If your family member uses mental health services, does the mental health professional understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
MO 53% 30% 13% 3% 90
Weighted NCI-IDD Average 63% 27% 6% 4% 1637


Table Q33. If you need respite services, how often are you able to use them?

State Always Usually Sometimes Seldom or Never N
MO ▼ 16% 16% 32% 37% 145
Weighted NCI-IDD Average 24% 19% 18% 38% 2370


Table Q34. If you have used respite services in the past year, were you satisfied with the quality of the respite services?

State Always Usually Sometimes Seldom or Never N
MO 58% 27% 3% 13% 78
Weighted NCI-IDD Average 62% 21% 7% 9% 1182


Table Q35. Does your family get the supports and services it needs?

State Yes No N
MO 76% 24% 231
Weighted NCI-IDD Average 75% 25% 4241


Table Q36. If family does not get the support and services needed, what additional services does your family need?

Categories are not mutually exclusive, therefore N is not shown.
State Respite Regularly Scheduled Support for Family Member Homemaker Services Home or Vehicle Modifications Counseling Family-to-Family Networks Support or Training to Use Family Member's Assistive Technology Other
MO 54% 43% 17% 13% 15% 9% 17% 39%
Weighted NCI-IDD Average 56% 31% 16% 17% 15% 15% 11% 35%


Choice, Decision Making and Control











Choice, Decision Making and Control Tables

Table Q37. Can your family choose or change the agency that provides your family member's services?

State Always Usually Sometimes Seldom or Never N
MO ▼ 51% 35% 6% 9% 163
Weighted NCI-IDD Average 67% 24% 4% 5% 3287


Table Q38. Can your family choose or change your family member's support workers?

State Always Usually Sometimes Seldom or Never N
MO 56% 26% 10% 8% 154
Weighted NCI-IDD Average 62% 24% 7% 7% 3203


Table Q39. Does your family directly manage support staff?

State Always Usually Sometimes Seldom or Never N
MO 44% 19% 6% 31% 136
Weighted NCI-IDD Average 53% 19% 9% 19% 2879


Table Q40. Do service providers for your family member work together to provide support?

State Yes No N
MO 77% 23% 137
Weighted NCI-IDD Average 82% 18% 2477


Table Q41. Did you, your family member, or someone else in your family choose your family member's case manager/service coordinator?

State Yes, Chose No, Didn't Choose but Can Change If Wanted No, Didn't Choose and Cannot Change If Wanted N
MO ▼ 23% 59% 18% 213
Weighted NCI-IDD Average 38% 51% 11% 3886


Involvement in the Community











Involvement in the Community Tables

Table Q42. Does your family member take part in activities in the community?

State Yes No N
MO 79% 21% 269
Weighted NCI-IDD Average 79% 21% 4717


Table Q43. For your family member, what makes it hard to take part in activities in the community?

Categories are not mutually exclusive, therefore N is not shown.
State Lack of Transportation Cost Lack of Support Staff Stigma Other
MO 15% 14% 24% 13% 33%
Weighted NCI-IDD Average 15% 12% 17% 12% 34%


Table Q44. Does your family member have friends other than paid support workers or family?

State Yes No N
MO 63% 37% 265
Weighted NCI-IDD Average 62% 38% 4663


Table Q45. In your community, are there resources that your family can use that are not provided by the I/DD agency?

State Yes No N
MO 74% 26% 198
Weighted NCI-IDD Average 73% 27% 3462


Table Q46. Does your family take part in any family-to-family networks in your community?

State Yes No N
MO ▼ 11% 89% 236
Weighted NCI-IDD Average 17% 83% 4039


Satisfaction With Services and Supports



























Satisfaction With Services and Supports Tables

Table Q47. Overall, are you satisfied with the services and supports your family member currently receives?

State Always Usually Sometimes Seldom or Never N
MO ▼ 31% 51% 12% 5% 267
Weighted NCI-IDD Average 39% 43% 14% 4% 4684


Table Q48. Do you know how to file a complaint or grievance about provider agencies or staff?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
MO 67% 33% 273
Weighted NCI-IDD Average 64% 36% 4756


Table Q49. If a complaint or grievance was filed or resolved in the past year, are you satisfied with the way it was handled?

MO's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
MO n/a n/a n/a
Weighted NCI-IDD Average 59% 41% 341


Table Q50. Do you know how to report abuse or neglect related to your family member?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
MO 85% 15% 268
Weighted NCI-IDD Average 84% 16% 4735


Table Q51. Within the past year, was a report of abuse or neglect filed on behalf of your family member?

State Yes No N
MO 1% 99% 268
Weighted NCI-IDD Average 2% 98% 4697


Table Q52. If a report of abuse or neglect was filed on behalf of family member, did the appropriate people respond to the report?

MO's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
MO n/a n/a n/a
Weighted NCI-IDD Average 61% 39% 53


Table Q53. If a report of abuse or neglect was filed on behalf of family member, if someone other than you or another family member reported abuse or neglect in the past year, were you notified of the report in a timely manner?

MO's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
MO n/a n/a n/a
Weighted NCI-IDD Average 65% 35% 39


Table Q54. Do you feel that services and supports have made a positive difference in the life of your family member?

State Yes No N
MO 95% 5% 249
Weighted NCI-IDD Average 95% 5% 4397


Table Q55. Have services and supports reduced your family's out-of-pocket expenses for your family member's care?

State Yes No N
MO 72% 28% 240
Weighted NCI-IDD Average 70% 30% 4249


Table Q56. Have the services or supports that your family member received during the past year been reduced, suspended, or terminated?

State Yes No N
MO 36% 64% 248
Weighted NCI-IDD Average 30% 70% 4431


Table Q57. If services or supports received by the family were reduced, suspended or terminated during the past year, did the change in services affect your family member negatively?

State Yes No N
MO 85% 15% 73
Weighted NCI-IDD Average 76% 24% 1227


Table Q58. Have the services or supports that your family member received been increased in the past year?

State Yes No N
MO 15% 85% 251
Weighted NCI-IDD Average 18% 82% 4279


Table Q59. Are services and supports helping your family member to live a good life?

State Yes No N
MO 94% 6% 236
Weighted NCI-IDD Average 93% 7% 4218


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