Adult Family Survey (AFS) 2019-20 State Report

New Hampshire (NH) Report

Contents

What is NCI?

The National Core Indicators (NCI) program is a voluntary effort by state developmental disability agencies to track their performance using a standardized set of consumer and family/guardian surveys with nationally validated measures. The effort is coordinated by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI).

In 2019-20, a total of 46 states, the District of Columbia and 22 sub-state entities participated in NCI.

Where are the statistics in this report from?

This report includes findings from the National Core Indicators® 2019-20 Adult Family Survey (AFS). The data shown are weighted NCI averages. These data are comprised of 19,183 valid surveys collected across 14 states: Arizona (AZ), California (CA), Delaware (DE), District of Columbia (DC), Florida (FL), Georgia (GA), Maryland (MD), Missouri (MO), New Hampshire (NH), North Carolina (NC), Oklahoma (OK), Pennsylvania (PA), South Dakota (SD), Washington (WA).

What is the NCI Adult Family Survey?

The NCI Adult Family Survey is used to gather data on family outcomes. It is mailed to families who have an adult family member who lives with the respondent and receives at least one service in addition to case management from the state DD agency. The survey collects demographic information on both the individual receiving services (‘family member’) as well as the person who fills out the survey (the ‘respondent’) and information on services and supports received. The survey is continually refined and tested to ensure it is valid and reliable.

Please note that while the term “case manager” is used throughout this report, the same role may also be referred to as “service coordinator” or “supports coordinator” depending on the state.

Important note on reponses: All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses, and personal characteristics.

Note: All qualified Californians with a developmental disability have both a civil right and an individual entitlement to receive services from the California Department of Developmental Services. California law mandates that the intake process begin within 15 days of an individual’s or family’s request for services and that the Department of Developmental Services begin providing services within 120 days after intake. These statutory requirements make California’s service system unique and could impact comparisons between its survey results and the results of other states.

Important note on Impact of COVID-19

The 2019-20 NCI Family Survey data collection cycle began July 1, 2019 and ended June 30, 2020. Midway through data collection, in February 2020, COVID-19 began to spread across the United States. Data collection for the NCI Family Surveys continued throughout the pandemic. States begin data collection at various times throughout the year – some before the pandemic started and some after. Because the family surveys do not collect information on the date of survey completion, we cannot fully assess what impact the pandemic had on data collected at different times throughout the year. Additionally, we cannot determine whether the onset of COVID-19 impacted state samples. For instance, we do not know if certain populations were more or less likely to respond to the survey after February and we do not know whether or how responses were affected for specific questions for those who completed the survey after the pandemic began. While these data will serve as an important baseline, and meaningful way for states to understand the overall impact of services on families of individuals being served, these data should be read with caution.

What is included in this report?

This report includes this state’s Adult Family Survey data compared to the NCI Average. State outcomes that are significantly higher or lower than the NCI Average are indicated with an arrow:

  1. Outcomes where the state is significantly above the NCI average are denoted with an up arrow ▲;
  2. Outcomes where the state is significantly below the NCI average are denoted with a down arrow ▼.

Significance is based on “Always” or “Yes” response.

The charts in this document, grouped by subdomain, display the state results alongside the average across states (NCI average). The charts are followed by accessible tables containing the same information.

To find out more about the development of the Adult Family Survey, data analysis and state samples, check out the National Adult Family Survey Report

Demographics - Family Member

Table 1. More Than One Person Living in the Home Has IDD

State Yes No N
NH 13% 87% 632
Weighted NCI Average 15% 85% 18537


Table 2. Family Member's Age

State Average Age N
NH 33.1 643
Weighted NCI Average 34.4 18904


Table 3. Family Member's Gender

State Male Female N
NH 55% 45% 643
Weighted NCI Average 61% 39% 18947


Table 4. Family Member's Race and Ethnicity

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other
NH 2% 2% 0% 0% 96% 2% 1%
Weighted NCI Average 2% 9% 13% 1% 59% 22% 1%


Table 5a. Family Member's Disabilities

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Intellectual Disability Mood Illness or Psychiatric Diagnosis Autism Spectrum Disorder Cerebral Palsy Limited or No Vision Severe or Profound Hearing Loss
NH 68% 31% 34% 13% 8% 7%
Weighted NCI Average 65% 23% 36% 18% 9% 7%


Table 5b. Family Member's Disabilities (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Brain Injury Seizure Disorder or Neurological Problem Chemical Dependency Down Syndrome Prader-Willi Syndrome Fetal Alcohol Spectrum Disorder Other Disabilities
NH 8% 29% 0% 16% 0% 0% 20%
Weighted NCI Average 10% 26% 1% 16% 1% 1% 17%


Table 6a. Family Member's Health Conditions

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Cardiovascular Disease Diabetes Cancer High Blood Pressure High Cholesterol
NH 13% 13% 6% 18% 29%
Weighted NCI Average 10% 18% 5% 30% 30%


Table 6b. Family Member's Health Conditions (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Dysphagia Pressure Ulcers Alzheimer's Disease or Other Dementia Oral Health Problems Sleep Apnea Other
NH 11% 3% 2% 8% 20% 34%
Weighted NCI Average 10% 2% 2% 13% 19% 25%


Table 7. Family Member's Preferred Means of Communication

State Spoken Gestures or Body Language Sign Language or Finger Spelling Communication Aid or Device Other N
NH 86% 9% 2% 3% 1% 649
Weighted NCI Average 78% 14% 2% 2% 4% 18721


Table 8. Family Member Has Legal Court Appointed Guardian or Conservator

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Guardianship Limited Full Has Guardianship but Level Is Unknown N
NH 15% 9% 73% 2% 646
Weighted NCI Average 37% 33% 28% 2% 17813


Table 9. Guardian or Conservator Relationship to Family Member

State Family Friend State Employee or Guardianship Agency Other N
NH 98% 1% 1% 1% 526
Weighted NCI Average 96% 1% 1% 3% 10330


Table 10. Family Member's Highest Level of Education

State Did Not Complete High School (and Not Currently Enrolled) Currently Enrolled in High School High School Certification High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
NH 9% 1% 42% 35% 3% 5% 4% 632
Weighted NCI Average 16% 3% 35% 29% 4% 7% 5% 17923


Table 11. Family Member's Activities in the Past Two Weeks Included Paid Individual Job in the Community

An individual job is defined as work at an individual job in a local business alongside peers who do not have disabilities. Job is part of the typical labor market (for example, competitive employment).
State Yes No N
NH 39% 61% 635
Weighted NCI Average 14% 86% 18302


Table 12. Family Member's Activities in the Past Two Weeks Included Paid Small Group Job in a Community-based Setting

A small group job is defined as work in an integrated setting, as part of a group of not more than 8 people with disabilities (for example, enclave, work crew).
State Yes No N
NH 8% 92% 611
Weighted NCI Average 10% 90% 17962


Table 13. Family Member's Activities in the Past Two Weeks Included Paid Work in a Community Job That Primarily Hires People With Disabilities

Paid work in a community job that primarily hires people with disabilities is defined as work in a setting where the person interacts with the non-disabled population; this is not in a traditional sheltered workshop and NOT enclave.
State Yes No N
NH 13% 87% 627
Weighted NCI Average 7% 93% 17895


Table 14. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in the Community

Unpaid work in the community includes: volunteering, skills training, and staff-supported community connections.
State Yes No N
NH 56% 44% 609
Weighted NCI Average 28% 72% 18038


Table 15. Family Member's Activities in the Past Two Weeks Included Paid Activity in a Facility-based Setting

Paid work performed in a facility-based setting is defined as work at a location developed specifically to provide work activity exclusively for people with disabilities; may be paid sub-minimum wage. Examples include traditional sheltered workshops or work activity centers.
State Yes No N
NH 3% 97% 615
Weighted NCI Average 13% 87% 17991


Table 16. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in a Facility-based Setting

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
NH 18% 82% 613
Weighted NCI Average 21% 79% 17765


Table 17. Family Member's Activities in the Past Two Weeks Included School

State Yes No N
NH 5% 95% 624
Weighted NCI Average 14% 86% 17811


Table 18. Family Member's Activities in the Past Two Weeks Included Stay at Home

State Yes No N
NH 42% 58% 592
Weighted NCI Average 53% 47% 17418


Table 19. Family Member's Activities in the Past Two Weeks Included Other Activities

State Yes No N
NH 62% 38% 237
Weighted NCI Average 44% 56% 6499


Table 20. Family Member's Support Needs for Self-Injurious, Disruptive, and/or Destructive Behaviors

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
NH 64% 27% 9% 635
Weighted NCI Average 52% 31% 18% 18570


Table 21. Family Member's Level of Help Needed with Personal Care Activities (for example, bathing, dressing, eating)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
NH 34% 36% 29% 650
Weighted NCI Average 26% 36% 38% 18893


Table 22. Family Member's Need for Help with Other Daily Activities (for example, scheduling, managing money, or shopping)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
NH 5% 27% 69% 647
Weighted NCI Average 7% 21% 72% 18740


Demographics - Respondents

Table 23. Language Usually Spoken at Home

State English Spanish Other N
NH 99% 0% 1% 649
Weighted NCI Average 83% 11% 7% 18919


Table 24. Respondent's Age

State Under 35 35-54 55-74 75 or Older N
NH 2% 20% 69% 9% 647
Weighted NCI Average 4% 22% 62% 11% 18882


Table 25. Respondent's Health

State Excellent Very Good Fairly Good Poor N
NH 18% 53% 26% 4% 647
Weighted NCI Average 16% 45% 34% 5% 18859




Table 27. Respondent or Other Family Member Provides Paid Support to Family Member Receiving Services

Responses to this question might have been impacted by the COVID-19 pandemic.
State Respondent Provides Paid Support Other Family Member Provides Paid Support No N
NH 29% 9% 63% 636
Weighted NCI Average 32% 13% 58% 18638


Table 28. Number of Adults in Household (Not Including Family Member Receiving Services)

State One Two Three Four or More N
NH 5% 29% 48% 19% 651
Weighted NCI Average 8% 29% 43% 20% 18771


Table 29. Number of Children (Under 18 Years Old) in Household

State None One Two Three Four or More N
NH 90% 7% 2% 0% 0% 651
Weighted NCI Average 85% 9% 4% 1% 1% 18807


Table 30. Respondent's Highest Level of Education

State No High School Diploma or GED High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
NH 2% 23% 6% 21% 48% 648
Weighted NCI Average 11% 22% 7% 23% 38% 18714


Table 31. Total Taxable Household Income of Wage Earners in the Past Year

State No Earned Income Up to $15,000 $15,001 to $25,000 $25,001 to $50,000 $50,001 to $75,000 Over $75,000 Prefer Not to Say N
NH 7% 8% 7% 16% 13% 22% 28% 629
Weighted NCI Average 10% 7% 10% 19% 12% 20% 22% 17697


Table 32. Residential Designation (Urban, Suburban, or Rural)

State Urban or Suburban Rural N
NH 53% 47% 636
Weighted NCI Average 78% 22% 17567


Demographics - Services and Supports Received

Table 33. Services and Supports Received From IDD Agency

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Financial Support Out-of-Home Respite Care Day or Employment Supports Transportation Other Services or Supports Self-Direction or Fiscal Intermediary Services
NH 37% 38% 56% 63% 29% 57%
Weighted NCI Average 15% 29% 53% 55% 25% 33%


Table 34. Additional Services and Supports Received (not from the IDD Agency)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Social Security Payments (SSI/SSB) Services or Supports from Other Agencies or Organizations
NH 94% 23%
Weighted NCI Average 90% 29%


Information and Planning

































Information and Planning Tables

Table Q1. Do you get enough information to take part in planning services for your family member?

State Always Usually Sometimes Seldom or Never N
NH 39% 39% 17% 4% 624
Weighted NCI Average 38% 36% 18% 8% 16723


Table Q2. Is the information you get about services and supports easy to understand?

State Always Usually Sometimes Seldom or Never N
NH ▼ 32% 49% 15% 4% 629
Weighted NCI Average 38% 43% 16% 3% 17904


Table Q3. Does the case manager respect your family's choices and opinions?

State Always Usually Sometimes Seldom or Never N
NH 70% 24% 4% 2% 618
Weighted NCI Average 73% 21% 5% 1% 18025


Table Q4. Do you have enough information about other public services for which your family is eligible (for example, food stamps, SSI, housing subsidies, etc.)

State Always Usually Sometimes Seldom or Never N
NH 34% 38% 17% 11% 569
Weighted NCI Average 33% 34% 18% 15% 15950


Table Q5. Do you need help planning for your family member's future with respect to any of the following?

Categories are not mutually exclusive, therefore N is not shown
State Employment Financial Housing Legal Medical Social or Relationships Transition From School Recreation or Having Fun Other
NH 40% 40% 59% 29% 27% 40% 4% 37% 13%
Weighted NCI Average 35% 35% 49% 36% 31% 32% 12% 39% 11%


Table Q6. If you asked for crisis or emergency services during the past year, were services provided when needed?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 45% 55% 91
Weighted NCI Average 50% 50% 4716


Table Q7. Does your family member have a service plan?

State Yes No N
NH 82% 18% 576
Weighted NCI Average 85% 15% 15610


Table Q8. Does the plan include all the services and supports your family member needs?

State Yes No N
NH 86% 14% 418
Weighted NCI Average 88% 12% 10725


Table Q9. Does your family member get all the services listed in the plan?

State Yes No N
NH 91% 9% 429
Weighted NCI Average 88% 12% 10722


Table Q10. Did you or someone else in your family (besides your family member with a disability) help make the plan?

State Yes No N
NH ▲ 89% 11% 454
Weighted NCI Average 81% 19% 11715


Table Q11. Did your family member help make the service plan?

State Yes No N
NH ▲ 74% 26% 463
Weighted NCI Average 65% 35% 11749


Table Q12. Did you discuss how to handle emergencies (such as a medical emergency or natural disaster) at your family member's last service planning meeting?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▼ 43% 57% 422
Weighted NCI Average 64% 36% 10683


Table Q13. If your family member left school services during the past year, did he or she have a transition plan?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 39% 61% 92
Weighted NCI Average 52% 48% 1999


Table Q14. If family member had a transition plan, did the transition plan include getting or continuing work in a community job?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 57% 43% 30
Weighted NCI Average 47% 53% 851


Table Q15. Does your family member have enough supports (for example, support workers, community resources) to work or volunteer in the community?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▲ 73% 27% 513
Weighted NCI Average 63% 37% 12371


Table Q16. Do you feel prepared to handle the needs of your family member in an emergency such as a medical emergency or natural disaster?

State Yes No N
NH ▲ 89% 11% 570
Weighted NCI Average 86% 14% 16407


Access and Delivery of Services and Supports









































Access and Delivery of Services and Supports Tables

Table Q17. Are you or your family member able to contact his or her support workers when you want?

State Always Usually Sometimes Seldom or Never N
NH 58% 34% 6% 2% 572
Weighted NCI Average 56% 33% 8% 3% 16274


Table Q18. Are you or your family member able to contact his or her case manager when you want?

State Always Usually Sometimes Seldom or Never N
NH 61% 31% 7% 1% 622
Weighted NCI Average 58% 31% 9% 3% 17765


Table Q19. Do support workers come and go when they are supposed to?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH 57% 36% 6% 2% 496
Weighted NCI Average 61% 32% 5% 2% 14481


Table Q20. Do services and supports change when your family's needs change?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH 39% 38% 13% 10% 438
Weighted NCI Average 38% 39% 15% 8% 12436


Table Q21. Do support workers speak to you in a way you understand?

State Always Usually Sometimes Seldom or Never N
NH 78% 19% 3% 0% 550
Weighted NCI Average 75% 21% 3% 1% 15960


Table Q22. Are services delivered in a way that is respectful of your family's culture?

State Always Usually Sometimes Seldom or Never N
NH 80% 16% 3% 1% 598
Weighted NCI Average 80% 17% 2% 1% 17286


Table Q23. If your family member does not communicate verbally (for example, uses gestures, sign language, or a communication aid), are there support workers who can communicate with him or her?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH 33% 46% 14% 8% 80
Weighted NCI Average 34% 36% 17% 14% 2933


Table Q24. Do support workers have the right information and skills to meet your family's needs?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▼ 43% 45% 10% 3% 519
Weighted NCI Average 50% 39% 9% 2% 15149


Table Q25. Does your family member have the special equipment or accommodations that he or she needs?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▲ 60% 25% 10% 5% 226
Weighted NCI Average 50% 32% 11% 6% 7016


Table Q26. Can your family member see health professionals when needed?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▲ 80% 16% 2% 1% 645
Weighted NCI Average 74% 20% 4% 1% 18542


Table Q27. Does your family member's primary care doctor understand your family member's needs related to his or her disability?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH 59% 30% 9% 1% 631
Weighted NCI Average 63% 28% 7% 2% 18020


Table Q28. Can your family member go to the dentist when needed?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▲ 73% 14% 4% 8% 633
Weighted NCI Average 65% 20% 8% 8% 18325


Table Q29. Does your family member's dentist understand your family member's needs related to his or her disability?

State Always Usually Sometimes Seldom or Never N
NH 68% 23% 5% 3% 569
Weighted NCI Average 63% 26% 8% 3% 16519


Table Q30. If your family member takes medications, do you know what they're for?

State Always Usually Sometimes Seldom or Never N
NH ▲ 95% 3% 1% 0% 568
Weighted NCI Average 92% 6% 1% 1% 15327


Table Q31. Do you, your family member, or someone else in your family know what is needed to safely take the medications (when it should be taken, how much to take, and the potential side effects)?

State Always Usually Sometimes Seldom or Never N
NH ▲ 96% 3% 0% 0% 568
Weighted NCI Average 91% 8% 1% 1% 15127


Table Q32. If your family member uses mental health services, does the mental health professional understand your family member's needs related to his or her disability?

State Always Usually Sometimes Seldom or Never N
NH 60% 29% 9% 2% 187
Weighted NCI Average 61% 26% 8% 5% 6728


Table Q33. If you need respite services, how often are you able to use them?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▼ 29% 22% 24% 26% 418
Weighted NCI Average 36% 21% 18% 24% 9921


Table Q34. If you have used respite services in the past year, were you satisfied with the quality of the respite services?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▲ 76% 19% 3% 2% 326
Weighted NCI Average 65% 23% 6% 6% 7402


Table Q35. Does your family get the supports and services it needs?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 76% 24% 568
Weighted NCI Average 78% 22% 15405


Table Q36. If family does not get the support and services needed, what additional services does your family need?

Categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Respite Regularly Scheduled Support for Family Member Homemaker Services Home or Vehicle Modifications Counseling Family-to-Family Networks Support or Training to Use Family Member's Assistive Technology Other
NH 47% 32% 12% 9% 18% 12% 3% 47%
Weighted NCI Average 50% 30% 16% 15% 22% 15% 15% 37%


Choice, Decision Making and Control











Choice, Decision Making and Control Tables

Table Q37. Can your family choose or change the agency that provides your family member's services?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▲ 69% 19% 2% 10% 374
Weighted NCI Average 62% 24% 6% 8% 9846


Table Q38. Can your family choose or change your family member's support workers?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH 53% 22% 14% 11% 438
Weighted NCI Average 59% 24% 9% 8% 9986


Table Q39. Does your family directly manage support staff?

State Always Usually Sometimes Seldom or Never N
NH 48% 15% 8% 29% 430
Weighted NCI Average 47% 20% 9% 24% 9516


Table Q40. Do service providers for your family member work together to provide support?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 84% 16% 297
Weighted NCI Average 81% 19% 9278


Table Q41. Did you, your family member, or someone else in your family choose your family member's case manager?

State Yes, Chose No, Didn't Choose but Can Change If Wanted No, Didn't Choose and Cannot Change If Wanted N
NH 23% 65% 12% 534
Weighted NCI Average 25% 61% 14% 13666


Involvement in the Community











Involvement in the Community Tables

Table Q42. Does your family member take part in activities in the community?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▲ 89% 11% 633
Weighted NCI Average 83% 17% 18206


Table Q43. For your family member, what makes it hard to take part in activities in the community?

Categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Lack of Transportation Cost Lack of Support Staff Stigma Other
NH 22% 18% 21% 10% 27%
Weighted NCI Average 16% 15% 16% 12% 25%


Table Q44. Does your family member have friends other than paid support workers or family?

State Yes No N
NH 66% 34% 629
Weighted NCI Average 62% 38% 17749


Table Q45. In your community, are there resources that your family can use that are not provided by the IDD agency?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 80% 20% 488
Weighted NCI Average 78% 22% 12719


Table Q46. Does your family take part in any family-to-family networks in your community?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▼ 8% 92% 583
Weighted NCI Average 19% 81% 15859


Satisfaction With Services and Supports



























Satisfaction With Services and Supports Tables

Table Q47. Overall, are you satisfied with the services and supports your family member currently receives?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
NH ▼ 32% 50% 13% 5% 632
Weighted NCI Average 40% 43% 13% 4% 18166


Table Q48. Do you know how to file a complaint or grievance about provider agencies or staff?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
NH ▲ 74% 26% 637
Weighted NCI Average 61% 39% 18465


Table Q49. If a complaint or grievance was filed or resolved in the past year, are you satisfied with the way it was handled?

State Yes No N
NH 60% 40% 52
Weighted NCI Average 58% 42% 2176


Table Q50. Do you know how to report abuse or neglect related to your family member?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
NH ▲ 84% 16% 634
Weighted NCI Average 78% 22% 18428


Table Q51. Within the past year, was a report of abuse or neglect filed on behalf of your family member?

State Yes No N
NH 3% 97% 631
Weighted NCI Average 2% 98% 17812


Table Q52. If a report of abuse or neglect was filed on behalf of family member, did the appropriate people respond to the report?

State Yes No N
NH n/a n/a n/a
Weighted NCI Average 76% 24% 267


Table Q53. If a report of abuse or neglect was filed on behalf of family member, if someone other than you or another family member reported abuse or neglect in the past year, were you notified of the report in a timely manner?

State Yes No N
NH n/a n/a n/a
Weighted NCI Average 69% 31% 198


Table Q54. Do you feel that services and supports have made a positive difference in the life of your family member?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 95% 5% 598
Weighted NCI Average 94% 6% 16722


Table Q55. Have services and supports reduced your family's out-of-pocket expenses for your family member's care?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 70% 30% 574
Weighted NCI Average 73% 27% 15785


Table Q56. Have the services or supports that your family member received during the past year been reduced, suspended, or terminated?

State Yes No N
NH 14% 86% 600
Weighted NCI Average 13% 87% 16499


Table Q57. If services or supports received by the family were reduced, suspended or terminated during the past year, did the change in services affect your family member negatively?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH 73% 27% 73
Weighted NCI Average 74% 26% 1763


Table Q58. Have the services or supports that your family member received been increased in the past year?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▼ 14% 86% 604
Weighted NCI Average 21% 79% 15802


Table Q59. Are services and supports helping your family member to live a good life?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
NH ▼ 90% 10% 600
Weighted NCI Average 93% 7% 16379


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