Family/Guardian Survey (FGS) 2020-21 State Report

Pennsylvania (PA) Report

Contents

What is NCI-IDD?

The National Core Indicators® – Intellectual and Developmental Disabilities (NCI®-IDD) is a voluntary effort by state developmental disability agencies to track their performance using a standardized set of consumer and family/guardian surveys with nationally validated measures. The effort is coordinated by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI).

In 2020-21, a total of 48 states, the District of Columbia and 22 sub-state entities participated in NCI-IDD.

Where are the statistics in this report from?

This report includes findings from the National Core Indicators® 2020-21 Family/Guardian Survey (FGS). The data shown are weighted NCI-IDD averages. These data are comprised of 3,118 valid surveys collected across 8 states: Arizona (AZ), Delaware (DE), Georgia (GA), Indiana (IN), Kentucky (KY), Maryland (MD), New Jersey (NJ), and Pennsylvania (PA).

What is the NCI-IDD Family/Guardian Survey?

The NCI-IDD Family/Guardian Survey is used to gather data on family outcomes. It is mailed to families who have an adult family member who does not live with the respondent and receives at least one service in addition to case management from the state DD agency. The survey collects demographic information on both the individual receiving services (“family member”) as well as the person who fills out the survey (the ‘respondent’) and information on services and supports received. The survey is continually refined and tested to ensure it is valid and reliable.

Please note that while the term “case manager” is used throughout this report, the same role may also be referred to as “service coordinator” or “supports coordinator” depending on the state.

Important note on reponses: All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses, and personal characteristics.

Important note on Impact of COVID-19

The 2020-21 NCI-IDD Family Survey data collection cycle began July 1, 2020 and ended June 30, 2021. Because the family surveys do not collect information on the date of survey completion, we cannot fully assess what impact the pandemic had on data collected at different times throughout the year. Additionally, we cannot determine whether COVID-19 impacted state samples. For instance, we do not know if certain populations were more or less likely to respond to the survey and we do not know whether or how responses were affected for specific questions. While these data will serve as an important baseline, and meaningful resource for states to understand the overall impact of services on families of individuals being served, these data should be read with caution.

COVID-19 Supplement

To help better understand the overall impact of COVID-19 on families, NCI-IDD added a state-optional COVID-19 Supplement to all NCI surveys. The COVID-19 Supplement is intended to support the understanding of the experiences of people with disabilities and their families during the COVID-19 pandemic, and their interactions with services. The NCI-IDD Family Surveys COVID-19 Supplement can be found at this link.

What is included in this report?

This report includes this state’s Family/Guardian Survey data compared to the NCI-IDD Average. State outcomes that are significantly higher or lower than the NCI-IDD Average are indicated with an arrow:

  1. Outcomes where the state is significantly above the NCI-IDD average are denoted with an up arrow ▲;
  2. Outcomes where the state is significantly below the NCI-IDD average are denoted with a down arrow ▼.

Significance is based on “Always” or “Yes” response.

The charts in this document, grouped by subdomain, display the state results alongside the average across states (NCI-IDD average). The charts are followed by accessible tables containing the same information.

To find out more about the development of the Family/Guardian Survey, data analysis and state samples, check out the National Family/Guardian Survey Report

Demographics - Family Member

Table 1. Family Member's Residence

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State Specialized Facility for People With Intellectual Disabilities Group Home or Agency-Operated Apartment Independent Home or Apartment Adult Foster Care or Host Family Home Nursing Home Homeless Other N
PA 19% 76% 1% 2% 1% 0% 1% 515
Weighted NCI-IDD Average 11% 67% 14% 5% 1% 0% 2% 3071


Table 2. Family Member's Residential Designation

State Urban or Suburban (In or Near a City or Large Town) Rural (Outside of a City or Town) N
PA 69% 31% 512
Weighted NCI-IDD Average 76% 24% 3040


Table 3. Family Member's Age

State Average Age N
PA 49.5 518
Weighted NCI-IDD Average 47.0 3054


Table 4. Family Member's Gender

State Male Female N
PA 56% 44% 518
Weighted NCI-IDD Average 58% 42% 3101


Table 5. Family Member's Race and Ethnicity

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other
PA 1% 1% 5% 0% 93% 1% 0%
Weighted NCI-IDD Average 2% 2% 9% 0% 87% 3% 1%


Table 6a. Family Member's Disabilities

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Intellectual Disability Mental Illness or Psychiatric Diagnosis Autism Spectrum Disorder Cerebral Palsy Limited or No Vision Severe or Profound Hearing Loss
PA 89% 43% 29% 16% 11% 7%
Weighted NCI-IDD Average 82% 39% 30% 16% 10% 7%


Table 6b. Family Member's Disabilities (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Brain Injury Seizure Disorder or Neurological Problem Chemical Dependency Down Syndrome Prader-Willi Syndrome Fetal Alcohol Spectrum Disorder Other Disabilities
PA 12% 31% 0% 11% 2% 0% 10%
Weighted NCI-IDD Average 10% 28% 0% 10% 1% 2% 13%


Table 7a. Family Member's Health Conditions

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Cardiovascular Disease Diabetes Cancer High Blood Pressure High Cholesterol
PA 13% 17% 7% 26% 29%
Weighted NCI-IDD Average 11% 18% 6% 34% 32%


Table 7b. Family Member's Health Conditions (continued)

State Dysphagia Pressure Ulcers Alzheimer's Disease or Dementia Oral Health Problems Sleep Apnea Other
PA 22% 2% 6% 16% 17% 24%
Weighted NCI-IDD Average 14% 2% 6% 14% 17% 23%


Table 8. Family Member's Preferred Means of Communication

State Spoken Gestures or Body Language Sign Language or Finger Spelling Communication Aid or Device Other N
PA 71% 22% 1% 1% 4% 512
Weighted NCI-IDD Average 77% 17% 2% 1% 4% 3074


Table 9. Family Member Has Legal Court Appointed Guardian or Conservator

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Guardianship Limited Full Has Guardianship but Level Is Unknown N
PA 36% 15% 41% 8% 479
Weighted NCI-IDD Average 29% 13% 52% 6% 2919


Table 10. Guardian or Conservator Relationship to Family Member

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State Family Friend Employee or Sate Guardianship Agency Other N
PA 92% 0% 4% 3% 290
Weighted NCI-IDD Average 90% 2% 4% 4% 2020


Table 11. Family Member's Highest level of Education

State Did Not Complete High School (and Not Currently Enrolled) Currently Enrolled in High School High School Certification High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
PA 38% 0% 24% 31% 3% 1% 3% 471
Weighted NCI-IDD Average 32% 0% 32% 24% 3% 3% 5% 2914


Table 12. Family Member's Activities in the Past Two Weeks Included Paid Individual Job in the Community

An individual job is defined as work at an individual job in a local business alongside peers who do not have disabilities. Job is part of the typical labor market (for example, competitive employment).
State Yes No N
PA 8% 92% 492
Weighted NCI-IDD Average 10% 90% 2842


Table 13. Family Member's Activities in the Past Two Weeks Included Paid Small Group Job in a Community-based Setting

A small group job is defined as work in an integrated setting, as part of a group of not more than 8 people with disabilities (for example, enclave, work crew).
State Yes No N
PA 5% 95% 489
Weighted NCI-IDD Average 5% 95% 2788


Table 14. Family Member's Activities in the Past Two Weeks Included Paid Work in a Community Job That Primarily Hires People With Disabilities

Paid work in a community job that primarily hires people with disabilities is defined as work in a setting where the person interacts with the non-disabled population; this is not in a traditional sheltered workshop and NOT enclave.
State Yes No N
PA 3% 97% 497
Weighted NCI-IDD Average 4% 96% 2812


Table 15. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in the Community

Unpaid work in the community includes: volunteering, skills training, and staff-supported community connections.
State Yes No N
PA 14% 86% 474
Weighted NCI-IDD Average 13% 87% 2733


Table 16. Family Member's Activities in the Past Two Weeks Included Paid Activity in a Facility-based Setting

Paid work performed in a facility-based setting is defined as work at a location developed specifically to provide work activity exclusively for people with disabilities; may be paid sub-minimum wage. Examples include traditional sheltered workshops or work activity centers.
State Yes No N
PA 15% 85% 492
Weighted NCI-IDD Average 12% 88% 2799


Table 17. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in a Facility-based Setting

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
PA 23% 77% 481
Weighted NCI-IDD Average 23% 77% 2735


Table 18. Family Member's Activities in the Past Two Weeks Included School

State Yes No N
PA 4% 96% 498
Weighted NCI-IDD Average 3% 97% 2811


Table 19. Family Member's Activities in the Past Two Weeks Included Stay at Home

State Yes No N
PA 55% 45% 481
Weighted NCI-IDD Average 58% 42% 2732


Table 20. Family Member's Activities in the Past Two Weeks Included Other Activities

State Yes No N
PA 32% 68% 119
Weighted NCI-IDD Average 30% 70% 947


Table 21. Family Member's Support Needs for Self-Injurious, Disruptive, and/or Destructive Behaviors

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
PA 31% 38% 32% 511
Weighted NCI-IDD Average 34% 39% 27% 2892


Table 22. Family Member's Level of Help Needed with Personal Care Activities (for example, bathing, dressing, eating)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
PA 14% 38% 48% 513
Weighted NCI-IDD Average 21% 39% 40% 2937


Table 23. Family Member's Need for Help with Other Daily Activities (for example, scheduling, managing money, or shopping)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State None Some Extensive N
PA 2% 14% 84% 512
Weighted NCI-IDD Average 3% 17% 80% 2939


Demographics - Respondents

Table 24. Language Usually Spoken at Home

State None Some Extensive N
PA 99% 0% 1% 507
Weighted NCI-IDD Average 99% 0% 1% 2919


Table 25. Respondent's Age

State Under 35 35-54 55-74 75 or Older N
PA 0% 6% 67% 26% 507
Weighted NCI-IDD Average 1% 10% 66% 23% 2923


Table 26. Respondent's Health

State Excellent Very Good Fairly Good Poor N
PA 17% 45% 32% 5% 505
Weighted NCI-IDD Average 16% 45% 34% 5% 2924




Table 28. Respondent's Frequency of Visits With Family Member Last Year

State Did Not Visit 1 to 3 Times 4 to 6 Times 7 to 12 Times More Than 12 Times N
PA 4% 11% 10% 17% 58% 508
Weighted NCI-IDD Average 3% 9% 9% 14% 65% 2927


Table 29. Respondent's Highest Level of Education

State No High School Diploma or GED High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
PA 4% 24% 7% 21% 45% 507
Weighted NCI-IDD Average 3% 20% 5% 21% 51% 2911


Table 30. Total Taxable Household Income of Wage Earners in the Past Year

State Up to $15,000 $15,001 to $25,000 $25,001 to $50,000 $50,001 to $75,000 Over $75,000 No Earned Income Prefer Not to Say N
PA 15% 3% 7% 15% 12% 18% 30% 474
Weighted NCI-IDD Average 12% 3% 7% 13% 13% 21% 31% 2699


Demographics - Services and Supports Received

Table 31. Services and Supports Received From IDD Agency

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Financial Support In-Home Support Residential Supports Day or Employment Supports Transportation Other Self-Direction or Fiscal Intermediary Services
PA 27% 45% 96% 53% 94% 66% 17%
Weighted NCI-IDD Average 29% 50% 91% 57% 90% 59% 25%


Table 32. Additional Services and Supports Received (not from the IDD Agency)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Social Security Payments (SSI or SSB) Services or Supports from Other Agencies or Organizations
PA 98% 27%
Weighted NCI-IDD Average 96% 26%


Information and Planning





































Information and Planning Tables

Table Q1. Do you get enough information to take part in planning services for your family member?

State Always Usually Sometimes Seldom or Never N
PA 41% 37% 17% 4% 468
Weighted NCI-IDD Average 37% 39% 18% 6% 2740


Table Q2. Is the information you get about services and supports easy to understand?

State Always Usually Sometimes Seldom or Never N
PA ▲ 41% 46% 10% 2% 485
Weighted NCI-IDD Average 35% 50% 13% 3% 2752


Table Q3. Do staff or the residential agency keep you informed about how your family member is doing?

State Always Usually Sometimes Seldom or Never N
PA ▲ 51% 30% 13% 6% 513
Weighted NCI-IDD Average 44% 32% 17% 8% 2821


Table Q4. Does the case manager respect your family's choices and opinions?

State Always Usually Sometimes Seldom or Never N
PA 59% 30% 9% 1% 483
Weighted NCI-IDD Average 61% 29% 8% 3% 2727


Table Q5. Do you need help planning for your family member's future with respect to any of the following?

Categories are not mutually exclusive, therefore N is not shown
State Employment Financial Housing Legal Medical Social or Relationships Transition From School Recreation or Having Fun Other
PA 23% 27% 30% 25% 46% 34% 3% 45% 19%
Weighted NCI-IDD Average 29% 31% 36% 28% 42% 35% 3% 42% 16%


Table Q6. In the past year, did your family member move out of the family home for the first time?

State Yes No N
PA ▼ 1% 99% 503
Weighted NCI-IDD Average 3% 97% 2872


Table Q7. If your family member moved out of the family home for the first time in the past year, did your family member receive enough information about services available to support them?

PA's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
PA n/a n/a n/a
Weighted NCI-IDD Average 77% 23% 90


Table Q8. If your family member moved out of the family home for the first time in the past year, did you have enough choices of service providers to support your family member living outside the family home?

PA's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
PA n/a n/a n/a
Weighted NCI-IDD Average 71% 29% 88


Table Q9. Does your family member have a service plan?

State Yes No N
PA ▲ 97% 3% 478
Weighted NCI-IDD Average 93% 7% 2426


Table Q10. Does the plan include all the services and supports your family member needs?

State Yes No N
PA ▲ 96% 4% 431
Weighted NCI-IDD Average 93% 7% 2018


Table Q11. Does your family member get all the services listed in the plan?

State Yes No N
PA 91% 9% 398
Weighted NCI-IDD Average 88% 12% 1879


Table Q12. Did you or someone else in your family (besides your family member with a disability) help make the plan?

State Yes No N
PA ▼ 71% 29% 438
Weighted NCI-IDD Average 79% 21% 2106


Table Q13. Did your family member help make the plan?

State Yes No N
PA ▼ 53% 47% 421
Weighted NCI-IDD Average 61% 39% 2065


Table Q14. Did you discuss how to handle emergencies (such as a medical emergency or natural disaster) at your family member's last service planning meeting?

State Yes No N
PA 64% 36% 376
Weighted NCI-IDD Average 63% 37% 1881


Table Q15. If your family member left school services during the past year, did they have a transition plan?

PA's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
PA n/a n/a n/a
Weighted NCI-IDD Average 22% 78% 93


Table Q16. If your family member had a transition plan, did the transition plan include getting or continuing work in a community job?

PA's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
PA n/a n/a n/a
Weighted NCI-IDD Average 48% 52% 31


Table Q17. Does your family member have enough supports (for example, support workers, community resources) to work or volunteer in the community?

State Yes No N
PA 71% 29% 284
Weighted NCI-IDD Average 66% 34% 1777


Table Q18. Do you feel prepared to handle the needs of your family member in an emergency such as a medical emergency or natural disaster?

State Yes No N
PA 74% 26% 420
Weighted NCI-IDD Average 75% 25% 2480


Access and Delivery of Services and Supports





































Access and Delivery of Services and Supports Tables

Table Q19. Are you or your family member able to contact their support workers when you want?

State Always Usually Sometimes Seldom or Never N
PA ▲ 64% 29% 5% 1% 492
Weighted NCI-IDD Average 58% 33% 7% 2% 2810


Table Q20. Are you or your family member able to contact their case manager when you want?

State Always Usually Sometimes Seldom or Never N
PA 66% 28% 5% 2% 496
Weighted NCI-IDD Average 61% 30% 6% 3% 2770


Table Q21. Do support workers come and go when they are supposed to?

State Always Usually Sometimes Seldom or Never N
PA ▲ 65% 32% 3% 1% 271
Weighted NCI-IDD Average 54% 39% 6% 2% 1824


Table Q22. Do services and supports change when your family's needs change?

State Always Usually Sometimes Seldom or Never N
PA 42% 38% 16% 3% 333
Weighted NCI-IDD Average 38% 42% 15% 5% 1892


Table Q23. Do support workers speak to you in a way you understand?

State Always Usually Sometimes Seldom or Never N
PA ▲ 73% 23% 2% 1% 485
Weighted NCI-IDD Average 68% 27% 4% 1% 2715


Table Q24. Are services delivered in a way that is respectful of your family's culture?

State Always Usually Sometimes Seldom or Never N
PA 78% 19% 3% 0% 486
Weighted NCI-IDD Average 73% 23% 3% 1% 2708


Table Q25. If your family member does not communicate verbally (for example, uses gestures, sign language, or a communication aid), are there support workers who can communicate with them?

State Always Usually Sometimes Seldom or Never N
PA 38% 46% 13% 4% 136
Weighted NCI-IDD Average 34% 44% 16% 6% 617


Table Q26. Do support workers have the right information and skills to meet your family's needs?

State Always Usually Sometimes Seldom or Never N
PA ▲ 46% 43% 10% 2% 461
Weighted NCI-IDD Average 39% 46% 13% 2% 2566


Table Q27. Does your family member have the special equipment or accommodations that they need?

State Always Usually Sometimes Seldom or Never N
PA ▲ 67% 27% 5% 1% 304
Weighted NCI-IDD Average 60% 32% 6% 2% 1549


Table Q28. Can your family member see health professionals when needed? (For example, doctor, dentist, psychologist)

State Always Usually Sometimes Seldom or Never N
PA ▲ 81% 16% 2% 0% 499
Weighted NCI-IDD Average 74% 23% 3% n/a 2838


Table Q29. Does your family member's primary care doctor understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
PA 63% 33% 3% 1% 426
Weighted NCI-IDD Average 61% 34% 4% 1% 2536


Table Q30. Can your family member go to the dentist when needed?

State Always Usually Sometimes Seldom or Never N
PA ▲ 77% 19% 3% 2% 496
Weighted NCI-IDD Average 70% 24% 4% 3% 2776


Table Q31. Does your family member's dentist understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
PA 71% 27% 2% 0% 423
Weighted NCI-IDD Average 68% 27% 4% 1% 2362


Table Q32. If your family member takes medications, do you know what they're for?

State Always Usually Sometimes Seldom or Never N
PA 70% 20% 7% 2% 472
Weighted NCI-IDD Average 69% 23% 6% 2% 2647


Table Q33. Do you, your family member, or someone else in your family know what is needed to safely take the medications (when it should be taken, how much to take, and the potential side effects)?

State Always Usually Sometimes Seldom or Never N
PA 73% 17% 6% 4% 435
Weighted NCI-IDD Average 72% 19% 5% 3% 2503


Table Q34. If your family member uses mental health services, does the mental health professional understand your family member's needs related to their disability?

State Always Usually Sometimes Seldom or Never N
PA 60% 32% 8% 1% 304
Weighted NCI-IDD Average 56% 34% 7% 2% 1632


Table Q35. Does your family get the supports and services it needs?

State Yes No N
PA ▲ 93% 7% 447
Weighted NCI-IDD Average 88% 12% 2521


Table Q36. If family does not get the support and services needed, what additional services does your family need?

Categories are not mutually exclusive, therefore N is not shown.
State Regularly Scheduled Support for Family Member Homemaker Services Home or Vehicle Modifications Counseling Family-to-Famiy Networks Other
PA 43% 0% 4% 11% 14% 50%
Weighted NCI-IDD Average 35% 13% 6% 23% 16% 60%


Choice, Decision Making and Control













Choice, Decision Making and Control Tables

Table Q37. Does the agency providing residential services to your family member involve them in important decisions?

State Always Usually Sometimes Seldom or Never N
PA 49% 30% 14% 7% 424
Weighted NCI-IDD Average 46% 32% 13% 9% 2352


Table Q38. Can your family choose or change the agency that provides your family member's services?

State Always Usually Sometimes Seldom or Never N
PA 61% 21% 7% 11% 272
Weighted NCI-IDD Average 64% 20% 6% 10% 1880


Table Q39. Can your family choose or change the individual staff that provide the services for your family member?

State Always Usually Sometimes Seldom or Never N
PA ▼ 17% 13% 17% 53% 283
Weighted NCI-IDD Average 25% 16% 16% 42% 1850


Table Q40. Does your family directly manage support staff?

State Always Usually Sometimes Seldom or Never N
PA ▼ 3% 1% 3% 93% 355
Weighted NCI-IDD Average 7% 4% 5% 85% 2053


Table Q41. Do service providers for your family member work together to provide support?

State Yes No N
PA 95% 5% 303
Weighted NCI-IDD Average 94% 6% 1957


Table Q42. Did you, your family member, or someone else in your family choose your family member's case manager?

State Yes, Chose Case Manager No, Didn't Choose but Can Change If Wanted No, Didn't Choose and Cannot Change If Wanted N
PA ▼ 15% 36% 49% 382
Weighted NCI-IDD Average 27% 25% 48% 2327


Involvement in the Community











Involvement in the Community Tables

Table Q43. Does your family member take part in activities in the community?

State Yes No N
PA 87% 13% 484
Weighted NCI-IDD Average 82% 18% 2730


Table Q44. For your family member, what makes it hard to take part in activities in the community?

Categories are not mutually exclusive, therefore N is not shown.
State Lack of Transportation Cost Lack of Support Staff Stigma Other
PA 5% 5% 21% 8% 33%
Weighted NCI-IDD Average 13% 9% 25% 7% 32%


Table Q45. Does your family member have friends other than paid support workers or family?

State Yes No N
PA 60% 40% 443
Weighted NCI-IDD Average 62% 38% 2620


Table Q46. In your community, are there resources that your family can use that are not provided by the IDD agency?

State Yes No N
PA 73% 27% 289
Weighted NCI-IDD Average 77% 23% 1861


Table Q47. Does your family take part in any family-to-family networks in your community? (For example, Parent to Parent, sibling networks, etc.)

State Yes No N
PA 12% 88% 421
Weighted NCI-IDD Average 14% 86% 2380


Satisfaction With Services and Supports

























Satisfaction With Services and Supports Tables

Table Q48. Overall, are you satisfied with the services and supports your family member currently receives?

State Always Usually Sometimes Seldom or Never N
PA ▲ 48% 41% 9% 2% 513
Weighted NCI-IDD Average 39% 46% 12% 3% 2865


Table Q49. Do you know how to file a complaint or grievance about provider agencies or staff?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
PA 64% 36% 512
Weighted NCI-IDD Average 63% 37% 2893


Table Q50. If a complaint or grievance was filed or resolved in the past year, are you satisfied with the way it was handled?

State Yes No N
PA 73% 27% 70
Weighted NCI-IDD Average 62% 38% 417


Table Q51. Do you know how to report abuse or neglect related to your family member?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
PA 74% 26% 511
Weighted NCI-IDD Average 74% 26% 2892


Table Q52. Within the past year, was a report of abuse or neglect filed on behalf of your family member?

State Yes No N
PA 9% 91% 488
Weighted NCI-IDD Average 8% 92% 2766


Table Q53. If a report of abuse or neglect was filed on behalf of your family member in the past year, did the appropriate people respond to the report?

State Yes No N
PA 91% 9% 35
Weighted NCI-IDD Average 80% 20% 163


Table Q54. If someone outside of your family reported abuse or neglect on behalf of your family member in the past year, were you notified of the report in a timely manner?

State Yes No N
PA ▼ 88% 12% 33
Weighted NCI-IDD Average 75% 25% 133


Table Q55. Do you feel that services and supports have made a positive difference in the life of your family member?

State Yes No N
PA ▲ 97% 3% 480
Weighted NCI-IDD Average 95% 5% 2667


Table Q56. Have the services or supports that your family member received during the past year been reduced, suspended, or terminated?

State Yes No N
PA 34% 66% 443
Weighted NCI-IDD Average 34% 66% 2542


Table Q57. If services or supports received by the family were reduced, suspended or terminated during the past year, did the change in services affect your family member negatively?

State Yes No N
PA 81% 19% 129
Weighted NCI-IDD Average 81% 19% 741


Table Q58. Have the services or supports that your family member received been increased in the past year?

State Yes No N
PA 18% 82% 381
Weighted NCI-IDD Average 17% 83% 2263


Table Q59. Are services and supports helping your family member to live a good life?

State Yes No N
PA 97% 3% 473
Weighted NCI-IDD Average 95% 5% 2632


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