Family/Guardian Survey (FGS) 2019-20 State Report

Florida (FL) Report

Contents

What is NCI?

The National Core Indicators (NCI) program is a voluntary effort by state developmental disability agencies to track their performance using a standardized set of consumer and family/guardian surveys with nationally validated measures. The effort is coordinated by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI).

In 2019-20 a total of 46 states, the District of Columbia and 22 sub-state entities participated in NCI.

Where are the statistics in this report from?

This report includes findings from the National Core Indicators® 2019-20 Family/Guardian Survey (FGS). The data shown are weighted NCI averages. These data are comprised of 9,435 valid surveys collected across 11 states: Arizona (AZ), California (CA), Florida (FL), Georgia (GA), Maryland (MD), Minnesota (MN), New Hampshire (NH), North Carolina (NC), Pennsylvania (PA), South Dakota (SD), and Utah (UT).

What is the NCI Family/Guardian Survey?

The NCI Family/Guardian Survey is used to gather data on family outcomes. It is mailed to families who have an adult family member who does not live with the respondent and receives at least one service in addition to case management from the state DD agency. The survey collects demographic information on both the individual receiving services (“family member”) as well as the person who fills out the survey (the ‘respondent’) and information on services and supports received. The survey is continually refined and tested to ensure it is valid and reliable.

Please note that while the term “case manager” is used throughout this report, the same role may also be referred to as “service coordinator” or “supports coordinator” depending on the state.

Important note on reponses: All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses, and personal characteristics.

Note: All qualified Californians with a developmental disability have both a civil right and an individual entitlement to receive services from the California Department of Developmental Services. California law mandates that the intake process begin within 15 days of an individual’s or family’s request for services and that the Department of Developmental Services begin providing services within 120 days after intake. These statutory requirements make California’s service system unique and could impact comparisons between its survey results and the results of other states.

Important note on Impact of COVID-19

The 2019-20 NCI Family Survey data collection cycle began July 1, 2019 and ended June 30, 2020. Midway through data collection, in February 2020, COVID-19 began to spread across the United States. Data collection for the NCI Family Surveys continued throughout the pandemic. States begin data collection at various times throughout the year – some before the pandemic started and some after. Because the family surveys do not collect information on the date of survey completion, we cannot fully assess what impact the pandemic had on data collected at different times throughout the year. Additionally, we cannot determine whether the onset of COVID-19 impacted state samples. For instance, we do not know if certain populations were more or less likely to respond to the survey after February and we do not know whether or how responses were affected for specific questions for those who completed the survey after the pandemic began. While these data will serve as an important baseline, and meaningful way for states to understand the overall impact of services on families of individuals being served, these data should be read with caution.

What is included in this report?

This report includes this state’s Family/Guardian Survey data compared to the NCI Average. State outcomes that are significantly higher or lower than the NCI Average are indicated with an arrow:

  1. Outcomes where the state is significantly above the NCI average are denoted with an up arrow ▲;
  2. Outcomes where the state is significantly below the NCI average are denoted with a down arrow ▼.

Significance is based on “Always” or “Yes” response.

The charts in this document, grouped by subdomain, display the state results alongside the average across states (NCI average). The charts are followed by accessible tables containing the same information.

To find out more about the development of the Family/Guardian Survey, data analysis and state samples, check out the National Adult Family Survey Report

Demographics - Family Member

Table 1. Family Member's Residence

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State Specialized Facility for People With Intellectual Disabilities Group Home or Agency-Operated Apartment Independent Home or Apartment Adult Foster Care or Host Family Home Nursing Home Homeless Other N
FL 6% 63% 27% 1% 0% 0% 3% 364
Weighted NCI Average 12% 59% 19% 8% 1% 0% 2% 9233


Table 2. Family Member's Residential Designation

State Urban or suburban (in or near a city or large town) Rural (outside of a city or town) N
FL 89% 11% 359
Weighted NCI Average 84% 16% 9121


Table 3. Family Member's Age

State Average Age N
FL 46.4 347
Weighted NCI Average 45.4 9163


Table 4. Family Member's Gender

State Male Female N
FL 57% 43% 363
Weighted NCI Average 60% 40% 9353


Table 5. Family Member's Race and Ethnicity

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State American Indian or Alaska Native Asian Black or African American Pacific Islander White Hispanic or Latino Other
FL 1% 1% 16% 0% 74% 10% 2%
Weighted NCI Average 2% 3% 11% 0% 80% 6% 2%


Table 6a. Family Member's Disabilities

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Intellectual Disability Mental Illness or Psychiatric Diagnosis Autism Spectrum Disorder Cerebral Palsy Limited or No Vision Severe or Profound Hearing Loss
FL 77% 37% 25% 20% 7% 4%
Weighted NCI Average 75% 36% 28% 16% 8% 6%


Table 6b. Family Member's Disabilities (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Brain Injury Seizure Disorder or Neurological Problem Chemical Dependency Down Syndrome Prader-Willi Syndrome Fetal Alcohol Spectrum Disorder Other Disabilities
FL 8% 26% 1% 9% 2% 0% 13%
Weighted NCI Average 10% 27% 1% 10% 1% 2% 13%


Table 7a. Family Member's Health Conditions

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Cardiovascular Disease Diabetes Cancer High Blood Pressure High Cholesterol
FL 9% 16% 7% 40% 37%
Weighted NCI Average 10% 19% 6% 31% 31%


Table 7b. Family Member's Health Conditions (continued)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown.
State Dysphagia Pressure Ulcers Alzheimer's Disease or Dementia Oral Health Problems Sleep Apnea Other
FL 9% 4% 4% 15% 10% 26%
Weighted NCI Average 11% 2% 5% 16% 14% 23%


Table 8. Family Member's Preferred Means of Communication

State Spoken Gestures or Body Language Sign Language or Finger Spelling Communication Aid or Device Other N
FL 73% 17% 2% 1% 7% 362
Weighted NCI Average 77% 16% 2% 2% 4% 9221


Table 9. Family Member Has Legal Court Appointed Guardian or Conservator

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Guardianship Limited Full Has Guardianship but Level Is Unknown N
FL 32% 18% 46% 4% 341
Weighted NCI Average 26% 25% 44% 4% 8649


Table 10. Guardian or Conservator Relationship to Family Member

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State Family Friend Employee or Sate Guardianship Agency Other N
FL 85% 2% 4% 9% 223
Weighted NCI Average 86% 2% 9% 4% 5449


Table 11. Family Member's Highest level of Education

State Did Not Complete High School (and Not Currently Enrolled) Currently Enrolled in High School High School Certification High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
FL 34% 2% 35% 16% 5% 3% 5% 343
Weighted NCI Average 33% 1% 32% 23% 3% 4% 5% 8722


Table 12. Family Member's Activities in the Past Two Weeks Included Paid Individual Job in the Community

An individual job is defined as work at an individual job in a local business alongside peers who do not have disabilities. Job is part of the typical labor market (for example, competitive employment).
State Yes No N
FL 7% 93% 346
Weighted NCI Average 12% 88% 8713


Table 13. Family Member's Activities in the Past Two Weeks Included Paid Small Group Job in a Community-based Setting

A small group job is defined as work in an integrated setting, as part of a group of not more than 8 people with disabilities (for example, enclave, work crew).
State Yes No N
FL 8% 92% 337
Weighted NCI Average 12% 88% 8467


Table 14. Family Member's Activities in the Past Two Weeks Included Paid Work in a Community Job That Primarily Hires People With Disabilities

Paid work in a community job that primarily hires people with disabilities is defined as work in a setting where the person interacts with the non-disabled population; this is not in a traditional sheltered workshop and NOT enclave.
State Yes No N
FL 4% 96% 347
Weighted NCI Average 6% 94% 8567


Table 15. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in the Community

Unpaid work in the community includes: volunteering, skills training, and staff-supported community connections.
State Yes No N
FL 23% 77% 336
Weighted NCI Average 27% 73% 8247


Table 16. Family Member's Activities in the Past Two Weeks Included Paid Activity in a Facility-based Setting

Paid work performed in a facility-based setting is defined as work at a location developed specifically to provide work activity exclusively for people with disabilities; may be paid sub-minimum wage. Examples include traditional sheltered workshops or work activity centers.
State Yes No N
FL 18% 82% 350
Weighted NCI Average 21% 79% 8538


Table 17. Family Member's Activities in the Past Two Weeks Included Unpaid Activity in a Facility-based Setting

An unpaid activity in a facility-based setting includes day habilitation, senior programs, or drop-in centers.
State Yes No N
FL 35% 65% 348
Weighted NCI Average 33% 67% 8251


Table 18. Family Member's Activities in the Past Two Weeks Included School

State Yes No N
FL 6% 94% 345
Weighted NCI Average 6% 94% 8627


Table 19. Family Member's Activities in the Past Two Weeks Included Stay at Home

State Yes No N
FL 28% 72% 332
Weighted NCI Average 27% 73% 8376


Table 20. Family Member's Activities in the Past Two Weeks Included Other Activities

State Yes No N
FL 43% 57% 139
Weighted NCI Average 42% 58% 2991


Table 21. Family Member's Support Needs for Self-Injurious, Disruptive, and/or Destructive Behaviors

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
FL 34% 35% 31% 354
Weighted NCI Average 33% 39% 28% 9135


Table 22. Family Member's Level of Help Needed with Personal Care Activities (for example, bathing, dressing, eating)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
FL 19% 36% 45% 360
Weighted NCI Average 24% 37% 39% 9235


Table 23. Family Member's Need for Help with Other Daily Activities (for example, scheduling, managing money, or shopping)

All data are reported by the respondent based on their understanding of their family member's demographics, diagnoses and personal characteristics.
State No Support Needed Some Support Needed Extensive Support Needed N
FL 4% 12% 83% 362
Weighted NCI Average 3% 21% 76% 9229


Demographics - Respondents

Table 24. Language Usually Spoken at Home

State English Spanish Other N
FL 96% 4% 1% 358
Weighted NCI Average 97% 1% 1% 9284


Table 25. Respondent's Age

State Under 35 35-54 55-74 75 or Older N
FL 3% 17% 61% 19% 357
Weighted NCI Average 2% 13% 62% 24% 9270


Table 26. Respondent's Health

Responses to this question might have been impacted by the COVID-19 pandemic.
State Excellent Very Good Fairly Good Poor N
FL 17% 44% 33% 6% 358
Weighted NCI Average 18% 46% 32% 5% 9280




Table 28. Respondent's Frequency of Visits With Family Member Last Year

State Did Not Visit 1 to 3 Times 4 to 6 Times 7 - 12 Times More Than 12 Times N
FL 1% 8% 8% 10% 73% 357
Weighted NCI Average 3% 9% 11% 12% 65% 9242


Table 29. Respondent's Highest Level of Education

State No High School Diploma or GED High School Diploma or GED Vocational School or Certificate Program Some College College Degree or Higher N
FL 4% 22% 7% 24% 43% 353
Weighted NCI Average 4% 17% 7% 23% 50% 9218


Table 30. Total Taxable Household Income of Wage Earners in the Past Year

State Up to $15,000 $15,001 to $25,000 $25,001 to $50,000 $50,001 to $75,000 Over $75,000 No Earned Income Prefer Not to Say N
FL 7% 9% 19% 9% 12% 11% 32% 308
Weighted NCI Average 6% 7% 16% 13% 21% 9% 28% 8234


Demographics - Services and Supports Received

Table 31. Services and Supports Received From IDD Agency

All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Financial Support In-Home Support Residential Supports Day or Employment Supports Transportation Other Self-Direction or Fiscal Intermediary Services
FL 25% 51% 88% 61% 90% 56% 52%
Weighted NCI Average 32% 45% 88% 69% 86% 54% 26%


Table 32. Additional Services and Supports Received (not from the IDD Agency)

All data are reported by the respondent based on their understanding of their family member’s demographics, diagnoses and personal characteristics; categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Social Security Payments (SSI or SSB) Services or Supports from Other Agencies or Organizations
FL 95% 31%
Weighted NCI Average 95% 29%


Information and Planning





































Information and Planning Tables

Table Q1. Do you get enough information to take part in planning services for your family member?

State Always Usually Sometimes Seldom or Never N
FL ▲ 50% 34% 11% 4% 335
Weighted NCI Average 42% 38% 13% 7% 8360


Table Q2. Is the information you get about services and supports easy to understand?

State Always Usually Sometimees Seldom or Never N
FL 41% 47% 11% 1% 337
Weighted NCI Average 42% 46% 10% 2% 8377


Table Q3. Do staff or the residential agency keep you informed about how your family member is doing?

State Always Usually Sometimees Seldom or Never N
FL ▲ 63% 22% 12% 3% 333
Weighted NCI Average 50% 29% 14% 8% 8702


Table Q4. Does the case manager respect your family's choices and opinions?

State Always Usually Sometimees Seldom or Never N
FL ▲ 77% 20% 2% 1% 352
Weighted NCI Average 65% 28% 5% 3% 8557


Table Q5. Do you need help planning for your family member's future with respect to any of the following?

Categories are not mutually exclusive, therefore N is not shown
State Employment Financial Housing Legal Medical Social or Relationships Transition From School Recreation or Having Fun Other
FL 22% 39% 43% 33% 49% 37% 10% 42% 23%
Weighted NCI Average 30% 35% 42% 28% 44% 33% 5% 36% 18%


Table Q6. In the past year, did your family member move out of the family home for the first time?

State Yes No N
FL 4% 96% 355
Weighted NCI Average 4% 96% 9056


Table Q7. If your family member moved out of the family home for the first time in the past year, did your family member receive enough information about services available to support him or her?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 86% 14% 282


Table Q8. If your family member moved out of the family home for the first time in the past year, did you have enough choices of service providers to support your family member living outside the family home?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 68% 32% 293


Table Q9. Does your family member have a service plan?

State Yes No N
FL 95% 5% 342
Weighted NCI Average 92% 8% 7664


Table Q10. Does the plan include all the services and supports your family member needs?

State Yes No N
FL 92% 8% 308
Weighted NCI Average 93% 7% 6218


Table Q11. Does your family member get all the services listed in the plan?

State Yes No N
FL 95% 5% 293
Weighted NCI Average 93% 7% 5869


Table Q12. Did you or someone else in your family (besides your family member with a disability) help make the plan?

State Yes No N
FL 78% 22% 315
Weighted NCI Average 80% 20% 6540


Table Q13. Did your family member help make the plan?

State Yes No N
FL 60% 40% 314
Weighted NCI Average 60% 40% 6369


Table Q14. Did you discuss how to handle emergencies (such as a medical emergency or natural disaster) at your family member's last service planning meeting?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL ▲ 90% 10% 298
Weighted NCI Average 67% 33% 5721


Table Q15. If your family member left school services during the past year, did he or she have a transition plan?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average. Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 29% 71% 352


Table Q16. If your family had a transition plan, did the transition plan include getting or continuing work in a community job?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 53% 47% 91


Table Q17. Does your family member have enough supports (for example, support workers, community resources) to work or volunteer in the community?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 66% 34% 211
Weighted NCI Average 72% 28% 5902


Table Q18. Do you feel prepared to handle the needs of your family member in an emergency such as a medical emergency or natural disaster?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL ▲ 86% 14% 328
Weighted NCI Average 76% 24% 7685


Access and Delivery of Services and Supports





































Access and Delivery of Services and Supports Tables

Table Q19. Are you or your family member able to contact his or her support workers when you want?

State Always Usually Sometimes Seldom or Never N
FL ▲ 76% 21% 2% 1% 351
Weighted NCI Average 59% 33% 6% 2% 8505


Table Q20. Are you or your family member able to contact his or her case manager when you want?

State Always Usually Sometimes Seldom or Never N
FL ▲ 77% 20% 2% 1% 348
Weighted NCI Average 59% 31% 6% 3% 8635


Table Q21. Do support workers come and go when they are supposed to?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 69% 29% 2% 0% 288
Weighted NCI Average 54% 39% 5% 1% 5830


Table Q22. Do services and supports change when your family's needs change?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 52% 35% 10% 2% 269
Weighted NCI Average 41% 43% 11% 5% 5836


Table Q23. Do support workers speak to you in a way you understand?

State Always Usually Sometimes Seldom or Never N
FL ▲ 80% 17% 2% 1% 341
Weighted NCI Average 72% 24% 3% 1% 8201


Table Q24. Are services delivered in a way that is respectful of your family's culture?

State Always Usually Sometimes Seldom or Never N
FL ▲ 83% 15% 2% 0% 341
Weighted NCI Average 77% 20% 2% 1% 8336


Table Q25. If your family member does not communicate verbally (for example, uses gestures, sign language, or a communication aid), are there support workers who can communicate with him or her?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL 41% 40% 16% 2% 82
Weighted NCI Average 41% 41% 14% 4% 1745


Table Q26. Do support workers have the right information and skills to meet your family's needs?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 59% 36% 4% 1% 331
Weighted NCI Average 44% 45% 9% 2% 7740


Table Q27. Does your family member have the special equipment or accommodations that he or she needs?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL 67% 27% 3% 3% 181
Weighted NCI Average 60% 31% 5% 3% 4242


Table Q28. Can your family member see health professionals when needed? (For example, doctor, dentist, psychologist)

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 82% 16% 2% 1% 352
Weighted NCI Average 74% 23% 3% 1% 8940


Table Q29. Does your family member's primary care doctor understand your family member's needs related to his or her disability?

State Always Usually Sometimes Seldom or Never N
FL 67% 28% 5% 0% 331
Weighted NCI Average 62% 32% 5% 1% 7899


Table Q30. Can your family member go to the dentist when needed?

State Always Usually Sometimes Seldom or Never N
FL 62% 27% 7% 4% 348
Weighted NCI Average 67% 25% 5% 3% 8638


Table Q31. Does your family member's dentist understand your family member's needs related to his or her disability?

State Always Usually Sometimes Seldom or Never N
FL 67% 24% 7% 2% 308
Weighted NCI Average 64% 29% 4% 2% 7270


Table Q32. If your family member takes medications, do you know what they're for?

State Always Usually Sometimes Seldom or Never N
FL ▲ 78% 18% 4% 1% 341
Weighted NCI Average 72% 22% 5% 1% 8098


Table Q33. Do you, your family member, or someone else in your family know what is needed to safely take the medications (when it should be taken, how much to take, and the potential side effects)?

State Always Usually Sometimes Seldom or Never N
FL ▲ 81% 15% 1% 3% 329
Weighted NCI Average 75% 19% 3% 3% 7590


Table Q34. If your family member uses mental health services, does the mental health professional understand your family member's needs related to his or her disability?

State Always Usually Sometimes Seldom or Never N
FL ▲ 72% 25% 2% 1% 209
Weighted NCI Average 58% 33% 7% 3% 4592


Table Q35. Does your family get the supports and services it needs?

State Yes No N
FL 90% 10% 332
Weighted NCI Average 90% 10% 7754


Table Q36. If family does not get the support and services needed, what additional services does your family need?

Categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Regularly Scheduled Support for Family Member Homemaker Services Home or Vehicle Modifications Counseling Family-to-Famiy Networks Other
FL 19% 15% 12% 0% 0% 81%
Weighted NCI Average 28% 16% 7% 26% 14% 59%


Choice, Decision Making and Control













Choice, Decision Making and Control Tables

Table Q37. Does the agency providing residential services to your family member involve him or her in important decisions?

State Always Usually Sometimes Seldom or Never N
FL ▲ 60% 21% 12% 8% 305
Weighted NCI Average 48% 32% 12% 8% 6937


Table Q38. Can your family choose or change the agency that provides your family member's services?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 76% 12% 5% 7% 282
Weighted NCI Average 63% 21% 6% 11% 5145


Table Q39. Can your family choose or change the individual staff that provide the services for your family member?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 54% 17% 9% 19% 272
Weighted NCI Average 32% 21% 14% 33% 5303


Table Q40. Does your family directly manage support staff?

State Always Usually Sometimes Seldom or Never N
FL ▲ 23% 10% 10% 57% 257
Weighted NCI Average 8% 6% 6% 80% 6109


Table Q41. Do service providers for your family member work together to provide support?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 95% 5% 282
Weighted NCI Average 93% 7% 6225


Table Q42. Did you, your family member, or someone else in your family choose your family member's case manager?

State Yes, Chose Case Manager No, Didn't Choose but Can Change If Wanted No, Didn't Choose and Cannot Change If Wanted N
FL ▲ 71% 23% 6% 337
Weighted NCI Average 21% 55% 24% 7198


Involvement in the Community











Involvement in the Community Tables

Table Q43. Does your family member take part in activities in the community?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 89% 11% 340
Weighted NCI Average 89% 11% 8618


Table Q44. For your family member, what makes it hard to take part in activities in the community?

Categories are not mutually exclusive, therefore N is not shown. Responses to this question might have been impacted by the COVID-19 pandemic.
State Lack of Transportation Cost Lack of Support Staff Stigma Other
FL 11% 15% 15% 6% 25%
Weighted NCI Average 15% 16% 22% 8% 24%


Table Q45. Does your family member have friends other than paid support workers or family?

State Yes No N
FL 69% 31% 337
Weighted NCI Average 66% 34% 8189


Table Q46. In your community, are there resources that your family can use that are not provided by the IDD agency?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 84% 16% 255
Weighted NCI Average 82% 18% 5925


Table Q47. Does your family take part in any family-to-family networks in your community? (For example, Parent to Parent, sibling networks, etc.)

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 16% 84% 297
Weighted NCI Average 14% 86% 7680


Satisfaction With Services and Supports

























Satisfaction With Services and Supports Tables

Table Q48. Overall, are you satisfied with the services and supports your family member currently receives?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Always Usually Sometimes Seldom or Never N
FL ▲ 57% 34% 8% 1% 355
Weighted NCI Average 43% 46% 9% 2% 8994


Table Q49. Do you know how to file a complaint or grievance about provider agencies or staff?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
FL ▲ 82% 18% 357
Weighted NCI Average 69% 31% 9106


Table Q50. If a complaint or grievance was filed or resolved in the past year, are you satisfied with the way it was handled?

State Yes No N
FL 70% 30% 40
Weighted NCI Average 67% 33% 1027


Table Q51. Do you know how to report abuse or neglect related to your family member?

Don't Know responses were included in "No" responses for this question.
State Yes No or Don't Know N
FL ▲ 90% 10% 363
Weighted NCI Average 80% 20% 9130


Table Q52. Within the past year, was a report of abuse or neglect filed on behalf of your family member?

State Yes No N
FL 6% 94% 348
Weighted NCI Average 6% 94% 8724


Table Q53. If a report of abuse or neglect was filed within the past year, did the appropriate people respond to the report?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 84% 16% 365


Table Q54. If someone outside of your family reported abuse or neglect within the past year, were you notified of the report in a timely manner?

FL's data are not included in the table due to low N (<20), but their responses are included in the NCI Average
State Yes No N
FL n/a n/a n/a
Weighted NCI Average 76% 24% 337


Table Q55. Do you feel that services and supports have made a positive difference in the life of your family member?

State Yes No N
FL 97% 3% 329
Weighted NCI Average 96% 4% 8500


Table Q56. Have the services or supports that your family member received during the past year been reduced, suspended, or terminated?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL ▲ 17% 83% 318
Weighted NCI Average 11% 89% 7891


Table Q57. If services or supports received by the family were reduced, suspended or terminated during the past year, did the change in services affect your family member negatively?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 84% 16% 45
Weighted NCI Average 80% 20% 758


Table Q58. Have the services or supports that your family member received been increased in the past year?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 15% 85% 282
Weighted NCI Average 19% 81% 6631


Table Q59. Are services and supports helping your family member to live a good life?

Responses to this question might have been impacted by the COVID-19 pandemic.
State Yes No N
FL 98% 2% 344
Weighted NCI Average 97% 3% 8377


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